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Alabama Public Health
www.adph.org/Default.asp?bhcp=1
State of Alaska, Health & Social Services
http://health.hss.state.ak.us
Arizona Department of Health Services
www.hs.state.az.us
Arkansas Department of Health
www.healthyarkansas.com
Arkansas Data & Research
www.healthyarkansas.com/data/data.html
Arkansas Patient Safety Initiative
Arkansas Foundation for Medical Care
401 W. Capital, Suite 410
Little Rock, AR 72201
(501) 375-5700
California Department of Health Services
www.dhs.cahwnet.gov
Healthcare Information Division
www.oshpd.state.ca.us/hid/index.htm
California Quality
Data: www.calhospitalcompare.org
California Healthcare Foundation
www.chcf.org/topics/index.cfm?topic=CL143
California Institute for Health Systems
Performance
1215 K Street, Suite 800
Sacramento, CA 95814
(916) 552-7642
www.cihsp.org
California Patient's Guide: Your Health Care
Rights and Remedies
Foundation for Taxpayer & Consumer Rights
1750 Ocean Park Blvd., Suite 200
Santa Monica, CA. 90405
(310) 392-0522
www.calpatientguide.org
HealthCareCoach.Com
A project of the National Health Law Program (NHeLP), a
non-profit legal organization. For more than 30 years, NHeLP has worked to
improve access to quality health care, educate consumers about their legal
rights and provide information and policy advocacy. Getting
the health care you and your family needs isn't always easy in a system that's
constantly changing. HealthCareCoach.com is packed with facts and do-it-yourself
tips on everything from health insurance to patient care - to help you help
yourself.
C/o National Health Law
Program
2639 S. La Cienega Blvd.
Los Angeles, CA. 90034
(310) 204-6010
www.healthcarecoach.com
Health Consumer Alliance
Resources for Consumers: www.healthconsumer.org/consumerlinks.html
405 14th St., 3rd Fl.
Oakland, CA. 94612
(510) 302-0445
Kaiser Family Foundation
The Henry J. Kaiser Family Foundation is an independent
philanthropy focusing on the major health care issues facing the nation.
2400 Sand Hill Rd.
Menlo Park, CA. 94025
(650) 854-9400
www.kff.org
Harvard
School of Public Health and Henry J. Kaiser Family Foundation
News Release, Dec. 12, 2002
4 in 10 of Public, More than one-third of Physicians say they
have personally
experienced medical errors
www.kff.org/content/2002/20021211a/Medical_Errors_Release.pdf
The Quaid Foundation
11620 Wilshire Blvd., Suite 460
Los Angeles, CA 90025
(310) 914-4040
www.thequaidfoundation.org/index.php?option=com_frontpage&Itemid=1
Our mission is to
raise the standard of patient medical care by:
- Breaking the “conspiracy of
silence” by raising public awareness of our
broken medical system, so that the medical
industry is compelled to become more publically
accountable to society at large. Our model will
be similar to that of the airline industry.
- Eliminating HUMAN ERROR
Our goal is to serve as
watchdog advocate and facilitator in the
development and implementation of systems,
technology, and safeguards that maximize patient
safely while minimizing the impact of HUMAN
ERROR in patient medical treatment. We also
strive to make the public aware of which medical
facilities are vigilant about operating at the
highest standard, so that patients may make a
more informed decision as to where to receive
their medical care.
- Patient’s Rights
Patients have the right to
know any information that could have an impact
on their health and well-being so that they may
access their own risks and make a more informed
decision in regards to their choice of
hospitals, doctors, and other medical
professionals by:
- Timely access to their
own medical records, with the assurance that
these records are in full, accurately kept
as per protocol, unabridged, or altered in
any way.
- Access to the “track
records”, if you will, of the health care
professionals taking care of them pertaining
to any past cases of malpractice or
reprimands from any state health board.
- Access to an evenly
balanced justice system when they or one of
their loved ones is the victim of egregious
medical error.
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SAFER California Healthcare: Strategic Alliance
for Error Reduction
California-based organization that is focusing on research,
education, and clinical practice in patient safety.
www.safer.healthcare.ucla.edu
Colorado Department of Public Health &
Environment
www.dhs.cahwnet.gov
Colorado Quality Data:
www.hospitalquality.org
Colorado Citizens for Accountability
Non-profit,
non-partisan
organization working
to preserve, improve
and protect the
rights of
individuals and
families within the
justice system.
5226 E. Weaver Ave.
Centennial, CO. 80121
www.coloradocitizensforaccountability.org
Colorado Patient Safety Coalition
Links to patient safety resources & ongoing activities in Colorado
(303) 360-1743
www.coloradopatientsafety.org
The National Institute for Patient Rights (NIPR) is a nonpartisan,
free-standing, community interest corporation with a social mission dedicated to
helping patients and their advocates protect and promote their rights and
address violations of patient rights.
Patient survey response forms: www.empowerpatients.com/index_files/Page677.htm.
6635 E 18th Ave.
Denver, CO. 80220
Phone: (303) 321-8600
www.empowerpatients.com Email:
empowerpatients@gmail.com
Connecticut Department of Public Health
www.dph.state.ct.us
Connecticut Department of Public
Health Physician Profile Website
www.dph.state.ct.us/MD_Profile/hlthprof.htm
Connecticut Hospital & Surgical Center Adverse Event
Reports
www.dph.state.ct.us/Agency_News/ADVERSE%20EVENTS.pdf
Connecticut Center for Patient Safety
PO Box 231335
Hartford, CT. 06123-1335
800-251-7444
www.ctcps.org
Delaware Health & Social Services
www.dhss.delaware.gov/dhss/index.html
Division of Long Term Care Residents Protection
http://www.dhss.delaware.gov/dhss/dltcrp
Toll-free 24-hour phone number for complaints regarding residents of long term care
facilities 1-877-453-0012
Toll-free fax number for complaints 1-877-264-8516
Division of Services for Aging and Adults with Physical Disabilities www.dsaapd.com
1-800-223-9074 or Email: DSAAPDinfo@state.de.us
Adult Protective Services
http://www.dhss.delaware.gov/dhss/dsaapd/aps.html
Case Management Services
http://www.dhss.delaware.gov/dhss/dsaapd/casman.html
Emergency Response System
http://www.dhss.delaware.gov/dhss//dsaapd/ers.html
Legal Services
http://www.dhss.delaware.gov/dhss/dsaapd/legal.html
Long Term Care Ombudsman
http://www.dhss.delaware.gov/dhss/dsaapd/ltcop.html
Florida Department of Health
www.doh.state.fl.us
Coalition to Protect America's Elders
Coalition creating public awareness of the conditions in our Nation's nursing
homes and proposing effective solutions for improving the care and treatment for
nursing home residents.
8094 Buck Lake Rd.
Tallahassee, FL. 32311
(850) 216-2727
www.protectelders.org
1stDoNoHarm.org
National Organization for Healthcare Industry Accountability and Reform in
Medicine
Our mission is to make healthcare safe for all by becoming a viable, visible
part of the debate and decision making regarding the root causes of and
solutions for the epidemic number of medical mistakes. Patients and
families continue to be the fallen victims of an ever-escalating medical
malpractice crisis which can only be stopped by restoring patients' unabridged
civil rights to redress in the civil courts and through simultaneously mandating
both individual providers' and hospital organizations: 1) Responsibility
for ensuring patient safety, and 2) full accountability for medical error harm. www.1stDoNoHarm.org
Contact Patti @ E-mail: pattioregan@netscape.net
FloridaHealthStat.com
www.floridahealthstat.com
Florida Hospital Association
Patient Safety Steering Committee
307 Park Lake
P.O. Box 531107
Orlando, FL. 32853-1107
(407) 841-6230
www.fha.org/quality
Floridians for Patient Protection (FPP)
Represents the essence of the spirit found across America for citizens to unite,
stand up and protect the rights and responsibilities of all in our democracy.
FPP is a proactive organization of medical malpractice and negligence victims
and their families striving for justice and change in Florida's medical care
system.
www.floridiansforpatientprotection.org
Med Help International - The Patient Medical
Information Center
Dedicated to helping patients find the highest quality medical information in
the world today. Offering patients the tools necessary to make informed
treatment decisions within the short time lines dictated by their illness or
disease.
6300 North Wickham Rd.
Suite 130, PMB #188
Melbourne, FL. 32940
(321) 259-7505
www.medhelp.org
Patient Safety
Day
A national consumer grassroots effort aimed at
improving the quality of patient safety throughout the healthcare spectrum. This
day is dedicated to patients and families who lost their lives/loved ones or
suffered severe injury from preventable medical errors. On Patient
Safety Day consumers and business and professional groups will provide,
disseminate and/or showcase information and/or achievements related to medical
errors and the improvement in the quality of patient safety within their
respective communities across the nation.
www.patientsafetyday.com
The Society for Prevention of Cruelty to Patients
A non-profit patients' rights organization.
Bradenton, FL. 34207
( 941) 751 -1069
Fax# (775) 257-6489
www.spcpi.homestead.com
Georgia Division of Public Health
www.ph.dhr.state.ga.us
Georgia Quality Data:
http://gahospitalqualitycheck.org
Carter Center
The Carter Center, in partnership with Emory University, is guided by a
fundamental commitment to human rights and the alleviation of human suffering;
it seeks to prevent and resolve conflicts, enhance freedom and democracy, and
improve health.
Public Information Office
One Copenhill
453 Freedom Parkway
Atlanta, GA. 30307
www.cartercenter.org
Centers for Disease Control
1600 Clifton
Rd.
Atlanta, GA. 30333
(404) 639-3311
www.cdc.gov
www.cdc.gov/ncidod/hip
Division of Healthcare Quality Promotion
www.cdc.gov/health/disease.htm
Research Medical Diseases
Georgia Hospital Association
Partnership for Health & Accountability
1675 Terrell Mill Road
Marietta, GA 30067
(770) 955-0324
www.gha.org
Hawaii Department of Public Health
www.hawaii.gov/health
Patient Safety Task Force
Healthcare Association of Hawaii
932 Ward Avenue, Suite 430
Honolulu, HI 96814-2126
(808) 521-8961
Idaho Department of Public Health & Welfare
www2.state.id.us/dhw
Healthwise
2601 N. Bogus Basin Rd.
Boise, Idaho, USA, 83702.
www.healthwise.org/about.aspx
Illinois Department of Public Health
www.idph.state.il.us/home.htm
Governor's Task Force on Patient Safety
www.idph.state.il.us/mederrors/patientsafehome.htm
MRSA in Illinois: Descriptive Analysis of Hospital Discharge Data 2002-2006
www.idph.state.il.us/health/infect/MRSA_Data_02-06.pdf
Illinois Department of Health
Illinois Project for Local Assessment of Needs (IPLAN)
The IPLAN Data System provides access to essential public
health data for assessment and planning purposes. The available data are
collected from many different sources. Data are generally provided at the county
level and, in some cases, at the community level. The system further identifies
associated populations by age, race, ethnicity and gender for selected
indicators.
http://app.idph.state.il.us
American Board of Medical Specialties
ABMS maintains a list of all board certified diplomates. Information about a
physician's certification status can be obtained by referring to: www.abms.org/login.asp
1007 Church Street, Suite 404
Evanston, IL. 60201-5913
Phone Verification (866) ASK-ABMS
(847) 491-909
www.abms.org
American Health Information Management Association
General information on medical records and state statutes regarding patient
access
919 North Michigan Avenue #1400
Chicago, IL 60611
(312) 787-2672
www.ahima.org
Chicago Patient Safety Institute
www.chicagopatientsafety.org
Consumers Advancing Patient Safety
(CAPS) is a consumer-led nonprofit organization formed to be
a collective voice for individuals, families and healers who wish to prevent
harm in healthcare encounters through partnership and collaboration.
CAPS
envisions creating global healthcare systems that are safe, compassionate &
just.
One W. Superior Street, Suite 2410
Chicago, IL 60610
Phone: 312-274-1301
Fax: 312-274-9696
Email: info@patientsafety.org
Families Advocating Injury Reduction (F.A.I.R.)
Organization dedicated to protecting the rights of consumers and workers; who
seek to organize and empower injury victims and their families through advocacy
and public policy. In addition to opposing limitations on the legal rights of
victims, FAIR is committed to developing and building public support for
policies that promote: safer consumer products, safety in the workplace, and
better quality health care.
Chicago Area (708) 354-8741
Downstate IL. (217) 352-6533
www.illinoisfair.org
Illinois Hospital Association (IHA)
Site offers information on medical errors in Illinois, including alerts,
Spotlight on Safety Series, reporting information, consumer resources, quality
collaboratives, and links to government reports.
P.O. Box 3015
Naperville, IL 60566
(630) 505-7777
www.ihatoday.org/public/patsafety
Partnership for Patient Safety (P4PS)
Patient-Centered initiative to advance the reliability of
healthcare systems worldwide
One Superior Place, Suite 2410
Chicago, IL. 60610
(312) 274-9695
www.p4ps.org
Save The Patient
Their mission is to educate and empower patients and the public
to make effective and informed health care decisions through objective
resources.
Lenore Janecek, President
260 E. Chestnut Street, #1712
Chicago, IL 60611
(312) 440-0630
www.savethepatient.org
United States Department of Health & Human
Services
www.hhs.gov
Indiana State Department of Public Health
www.state.in.us/isdh/index.htm
Iowa Dept. of Public Health
Patient Safety Advisory Committee
321 East 12th St.
Des Moines, IA. 50319
(515) 281-8936
www.idph.state.ia.us/dir_off/csha/patientsafety.htm
Iowa Quality Data:
www.ihconline.org/iowareport/iowareport.cfm
Division of Health
Kansas Department of Health and Environment
www.kdhe.state.ks.us/health/index.html
Kansas Department of Health &
Environmental
Center for Health & Environmental Statistics
The Kansas Information for Communities (KIC) system gives
data users the chance to prepare their own queries for vital event and other
health care data. The queries designed into this system will answer many health
data requests.
http://kic.kdhe.state.ks.us/kic
Kentucky Cabinet for Health Services
http://chs.state.ky.us
Kentucky Quality Data:
www.kyha.com/QualityData
Kentucky Medical Association
Patient Safety Task Force
4965 US Hwy 42 Suite 2000
Louisville, KY. 40222
(502) 426-6200
"How to Manage Your Medications"
www.kyma.org/Public/medications.htm
Kentucky Watch
is a non partisan, non profit, consumer advocacy organization that
promotes the education of citizens in Kentucky on the legislative
process and regulatory decision making. We work towards focusing
greater citizen, government, and media attention on healthcare and
insurance industries by pushing for stronger regulation, greater
accountability and more open access to information about how these
industries discipline wrong doers, set rates, correct errors and
establish standards. Their
vision is for consumer driven systems that openly disclose healthcare
outcomes, insurance costs/rates and the establishment of standards.
112 Lakeview Court
Georgetown, KY 40324
(502)370-6657
Email:
director@kywatch.org
www.kywatch.org
Louisiana Department of Health and Hospitals
www.dhh.state.la.us
Maine Bureau of Health
www.state.me.us/dhs/boh
Maine Health Data
Organization
MHDO was established by the
Maine Legislature in 1996 as an independent executive
agency to collect clinical and financial health care information and to exercise
responsible stewardship in making this information accessible to the public.
MHDO policy is established by an eighteen member board that represents health
care providers, payers and consumers.
HealthWeb of Maine provides direct access to a searchable database of
health data and statistics for the State of Maine and links to other
health-related information at the state and national level. This site was
constructed to meet the needs of experts in the health care field as well as the
public at large.
151 Capitol Street
102 State House Station
Augusta, ME. 04333-0102
(207) 287-6722
www.healthweb.state.me.us/start.asp
Maine Quality Forum
In 2003 Governor Baldacci and your Maine Legislature
created the Maine Quality Forum, as an independent division of Dirigo Health, to
continue Maine's leadership in assuring high quality healthcare for its citizens.
The Maine Quality Forum's mission is to advocate for high quality
healthcare and help each Maine citizen make informed healthcare choices.
211 Water Street
53 State House Station
Augusta, ME. 04330
(207) 287-9900
www.mainequalityforum.gov/mqsp01f.html
National Academy for State Health Policy
Non-profit, non-partisan organization dedicated to helping states achieve
excellence in health policy and practice.
10 Free Street, Second Floor
Portland, ME 04101
(207) 874-6524
www.nashp.org
Maximizing the Use of State Adverse Event Data to
Improve Patient Safety
An October 2005 report by Jill Rosenthal and Maureen Booth
This report reviews
key findings from a summit of state officials who administer reporting systems.
The meeting also included data analysts and data users (providers, purchasers,
and consumers). The purpose of the summit was to identify mechanisms and tools
used to improve data integrity, event report analysis, and data feedback and
dissemination. The report focuses on these issues and raises a number of
challenges and opportunities that states encounter as they attempt to improve
their databases and the usefulness of the data for improving patient safety.
www.nashp.org/psdataresources
Report on state-based safety centers
that have the goal of reducing medical errors
www.nashp.org/Files/final_web_report_11.01.04.pdf
An Act to Reduce Medical Errors
and Improve Patient Health: A Case Study from Maine
News Brief detailing the chronology of Maine's Patient Safety
Legislation
www.nashp.org/Files/Mandatory_reporting_ME.pdf
Quality and Patient
Safety
www.nashp.org/_catdisp_page.cfm?LID=59D44F84-32B5-11D6-BCEA00A0CC558925
Mandatory
Reporting Rules and Statutes listed by State
www.nashp.org/_docdisp_page.cfm?LID=2A789909-5310-11D6-BCF000A0CC558925
Publications
S. Conrow
Comden, J. Rosenthal. Statewide Patient Safety
Coalitions: A Status Report.
Portland, ME. National Academy for State Health Policy. 2002.
Rosenthal , Jill, Maureen Booth and Anne Barry. Cost
Implications of State Medical Error Reporting Programs: A Briefing Paper. Portland,
ME. National Academy for State Health Policy. 2001.
Rosenthal , Jill et al. Current State Programs Addressing
Medical Errors: An Analysis of Mandatory Reporting and Other Initiatives.
Portland, ME. National Academy for State Health Policy. 2001 .
Riley, Trish. The Flood Tide Forum, Improving Patient
Safety: What States Can Do About Medical Errors. Portland,
ME. National Academy for State Health Policy. 2000.
Rosenthal, Jill and Maureen Booth. How Safe is Your
Health Care? A workbook for states seeking to build accountability
and quality improvement through mandatory reporting systems. Portland,
ME. National Academy for State Health Policy. 2001 .
Rosenthal, Jill and Trish Riley. Patient Safety and
Medical Errors: A Road Map for State Action. Portland, ME. National
Academy for State Health Policy. 2001 .
Flowers, Lynda and Trish Riley. State-based Mandatory
Reporting of Medical Errors: An Analysis of the Legal and Policy Issues.
Portland, ME: National Academy for State Health Policy. 2001 .
Rosenthal, Jill, Trish Riley and Maureen Booth. State
Reporting of Medical Errors and Adverse Events: Results of a 50-State Survey. Portland,
ME: National Academy for State Health Policy. 2000 .
Order NASHP Publications on line:
http://nashp.org/store/prodpage.cfm?CategoryID=2#3
Voice4Patients.Com
Comprehensive listing of resources to enable and empower consumers to become
active partners in their health care; thus reducing the risk of health care
error.
www.voice4patients.com
Maryland Department of Health and Mental Hygiene
www.dhmh.state.md.us , http://mdpublichealth.org
Maryland Health Care Commission
Final Report on the Study of Patient Safety in Maryland (HB 1274 - 2001)
www.mhcc.state.md.us/legislative/finalrpt.pdf
Agency for Healthcare Research and Quality
Center for Quality Improvement & Patient Safety
The Nation's Lead Federal Agency for Research on Health Care
Quality, Costs, Outcomes, and Patient Safety
540 Gaither Road
Rockville, MD, 20850
(301) 427-1364
www.ahrq.gov
AHRQ's Patient Safety E-Newsletter:
http://www.ahrq.gov/qual/ptsflist.htm
Medical Errors &
Patient Safety
www.ahrq.gov/qual/errorsix.htm
5
Steps to Safer Health Care
http://www.ahrq.gov/consumer/5steps.htm
20
Tips to Prevent Medical Error
http://www.ahrq.gov/consumer/20tips.htm
Questions to ask your Surgeon before Surgery
http://www.ahrq.gov/consumer/surgery.htm
A
guide for Patients and Families: Improving Health Care Quality
http://www.ahrq.gov/consumer/qntlite
20 Tips to Help Prevent
Medical Errors in Children
http://www.ahrq.gov/consumer/20tipkid.htm
Medical Errors - The Scope of the Problem
www.ahrq.gov/qual/errback.htm
AHRQ PSNet (http://psnet.ahrq.gov/about.aspx)
features the latest news and essential resources on patient safety. The site
offers weekly updates of patient safety literature, news, tools, and meetings,
and a vast set of carefully annotated links to important research and other
information on patient safety.
AHRQ WebM&M (http://webmm.ahrq.gov/),
the online patient safety journal, features expert analysis of medical errors
reported anonymously by our readers, interactive learning modules on patient
safety, and forums for online discussion.
Department of Defense (DOD)
Armed Forces Institute Pathology
Patient Safety Center
1335 East West Highway, Suite 6-100
Silver Spring, MD. 20910-9813
(800) 863-3263 or (301) 295-7242
www.defenselink.mil
www.afip.org/PSC
Patient Safety Workgroup
Maryland Patient Safety Organization
This site is provided as a service to the public, health care providers and
policy makers who wish to be informed about regional initiatives and
developments relating to patient safety.
FMI: Delmarva Foundation
9240 Centerville Rd.
Easton, MD.
(410) 822-0697
www.marylandpatientsafety.org
National Council on Patient Information and
Education (NCPIE)
Provides direct links to timely, authoritative guidelines, tips and resources to
help consumers use medicines safely and appropriately
4915 Saint Elmo Ave., Suite 505
Bethesda, MD. 20814-6082
(301) 656-8565
www.talkaboutrx.org/consumer.html
U.S. Food & Drug Administration
Center for Drug Evaluation and Research
1-888-INFO-FDA (1-888-463-6332)
5600 Fishers Lane
Rockville, MD. 20857-0001
www.fda.gov/cder/drug/MedErrors/default.htm
(Medication Errors)
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District
of Columbia
(Washington, DC) |
Department of Health District of Columbia
www.state.de.us/dhss/index.html
AARP
Administers programs that assist older Americans
601 E St. N.W.
Washington, DC. 20049
www.aarp.org
Medical Error
and Patient Injury: Costly and Often Preventable
http://research.aarp.org/health/ib35_medical_prn.html
Free Brochures:
Choosing Good Care: A Family Guide to Finding a Nursing Home
(D17064)
Solving Nursing Home Problems: A Guide for Families (D17065)
Partners in Caring: A Family Guide to Working with Nursing
Assistants for
Better Nursing Home Care (D17310)
Association of Trial Lawyers of America
"Keep our Families Safe: Consumer News for
Families" http://www.atla.org/public/columns/mederr.htm
Activist Center www.atla.org/ActivistCenter/ActivistCenter.aspx
The Leonard M. Ring Law Center
1050 31st Street, NW
Washington, DC. 20007
800-424-2725
E-mail: info@atlahq.org
www.atla.org
Citizens for Health
National organization representing consumers on issues of choice, access,
information and safety for natural health products and therapies
5 Thomas Circle NW, Suite 500
Washington, DC. 20005
(202) 483-1652
www.citizens.org
Families USA
Advocates for high-quality, affordable health care
1334 G Street, NW
Washington DC. 20005
(202) 628-3030
www.familiesusa.org
Institute for Family-Centered Care
7900 Wisconsin Ave., Suite 405
Bethesda, MD. 20814
(301) 652-0281
www.familycenteredcare.org
Institute of Medicine
Part of the National
Academy of Sciences; publishers of objective and authoritative information on a
variety of health topics.
2101 Constitution Ave., NW
Washington, D.C. 20418
www.iom.edu
Patient Safety: Institute of Medicine's
1999 Report, "To Err is Human"
http://books.nap.edu/html/to_err_is_human
Institute of Medicine's
Report "Crossing the Quality Chasm: A New Health System for the
21st Century"
www.nap.edu/catalog/10027.html
Leapfrog Group
Leapfrog initiatives to drive great leaps in patient
safety and healthcare quality
C/O Academy
1801 K. St., NW, Suite 701-L
Washington, DC. 20006
(202) 292-6713
www.leapfroggroup.org/safety.htm Patient Safety
Information
National Coalition on Health Care
Non-profit, non-partisan organization comprising almost 96 member
groups, including corporations, labor unions, small business, and the nation's
major religious, consumer, and health care provider organizations, united in
their shared concern about the current state of America's health care
1200 G. St., N.W., Suite 750
Washington, DC. 20005
(202) 638-7151
www.nchc.org
National Quality Forum
Not-for-profit membership organization created to develop and
implement a national strategy for health care quality measurement and reporting.
Established as a public-private partnership, the NQF has broad participation
from all parts of the health care system; including national, state, regional,
and local groups representing consumers, public and private purchasers,
employers, health care professionals, provider organizations, health plans,
accrediting bodies, labor unions, supporting industries, and organizations
involved in health care research or quality improvement.
601 Thirteenth Street, NW
Suite 500 North
Washington, DC. 20005
(202) 783-1300
www.qualityforum.org
www.qualityforum.org/txsafeexecsumm+order6-8-03PUBLIC.pdf.
National Women's Health Network
Consumer advocacy group giving women a greater voice in the
health care system
1325 G Street N.W.
Washington, DC. 20005
(202) 347-1140
www.womenshealthnetwork.org
Talk About Medical Experiences (T.A.M.E.)
Nonprofit organization that advocates and publicly targets
medical errors, discrimination, and abuse in the medical care delivery system,
to the extent that recipients and former recipients of medical care may need
assistance to support and protect their rights
Pres. & CEO, Dr. J. Talbert
PO Box 6850
Washington, DC. 20020
(202) 678-6038
www.tameinc.org
Washington D.C. Patient Safety Web site
Provided as a service to the public, health care providers and policy makers who
wish to be informed about regional initiatives and developments relating to
patient safety
www.dcpatientsafety.org/default_index.html
State of Massachusetts
Executive Office of Health & Human Services
www.masscares.org
Massachusetts Quality
Data:
www.patientsfirstma.org
Institute for Healthcare Improvement
Not-for-profit organization created to help lead the
improvement of health care systems, to increase continuously their quality and
value
20 University Road, 7th Floor
Cambridge, MA 02138
(617) 301-4800
www.ihi.org
National Patient Safety Foundation
1120 MASS MoCA Way
North Adams, MA. 01247
(413)
663-8900
www.npsf.org
Massachusetts Coalition for the Prevention of
Medical Errors
Initiated in 1997 as a statewide collaborative effort to improve patient safety
and minimize medical errors in Massachusetts
5 New England Executive Park
Burlington, MA. 01803-5096
(781) 272-8000 ext. 152
www.mhalink.org/mcpme/mcpme_welcome.htm
Massachusetts Health
Data Consortium
Non-profit organization
established for the purpose of developing, collecting, analyzing and
disseminating health care information to improve the health and healthcare of
the region. 460 Totten Pond Road, Suite 385
Waltham, MA 02451
(781) 890-6040
www.mahealthdata.org
E-mail: Info@mahealthdata.org
Medically Induced Trauma Support
Services (MITSS), Inc.
Supports, educates, trains, and offers assistance to individuals
affected by medically induced trauma.
PO Box 343
Mansfield, MA 02048
Tel: 1-508-337-2900
Toll Free: (888) 36-MITSS
www.mitss.org
State of Michigan
Department of Community Health
www.michigan.gov/mdch
Michigan Quality Data:
www.mha.org/mha_app/keystone/index.jsp
Michigan Health and Safety Coalition
27000 W. Eleven Mile Road
Mail Code: B713
Southfield, MI 48034
(248) 448-6266
Veteran's Administration (VA) National Center
for Patient Safety
Information on root cause analysis, the culture of safety & health care
safety updates and news.
Department of Veterans Affairs
National Center for Patient Safety
24 Frank Lloyd Wright Dr.
Lobby M, PO Box 486
Ann Arbor, MI. 48106-0486
(734) 930-5890
www.patientsafety.gov
State of Minnesota
Department of Health
www.health.state.mn.us
Datanet - Minnesota Health Profiles
www.mnplan.state.mn.us/datanetweb/health.html
Minnesota Alliance for Patient Safety
Minnesota Hospital and Healthcare Partnership
2550 W. University Ave.
Suite 350-S
St. Paul, MN 55114-1900
(651) 641-1121
www.mnpatientsafety.org
Mississippi Department of Health
www.msdh.state.ms.us/index.htm
Department of Health and Senior Services
www.health.state.mo.us
Missouri Profile/MICA Index
This index is intended to serve as a ready reference to help
locate data and information contained in the Department of Health Home Page for
specific behaviors/conditions. Most of the data is contained in Community
Data Profiles (static data tables) and Missouri
Information for Community Assessment (MICA) (interactive data system).
www.health.state.mo.us/GLRequest/index.html
Missouri Quality Data:
www.focusonhospitals.com
Patients In ARMS
Advocates Reforming Medical
Standards
7480 Gravois Road
Dittmer, Missouri 63023
(636) 274-ARMS
E-mail: Carmilarms@aol.com
http://members.aol.com/carmilarms/PatientsInArms.htm
Montana Department of Public Health & Human
Services
www.dphhs.state.mt.us/about_us/about_us.htm
Nebraska Health and Human Services System
www.hhs.state.ne.us
Nebraska Health & Human Services Systems
Research & Statistical Data
www.hhs.state.ne.us/srd/srdindex.htm
Nevada State Health Division
http://health2k.state.nv.us
Nevada State Health Division
Maternal and Child Health
Information Internet-Query Module (MatCHIIM) Abstract
This MatCHIIM site gives you on-line information about Maternal
and Child Health (MCH) measures. This site allows policy makers, MCH
professionals, and the public to do interactive searches of statistics on birth,
death, hospitalization, and population.
http://health2k.state.nv.us/Matchiimt/main
Department of Health & Human Services
www.dhhs.state.nh.us/DHHS/DHHS_SITE/default.htm
New Hampshire Quality Data:
www.nhqualitycare.org
New Jersey Department of Health and Senior
Services
www.state.nj.us/health
Robert Wood Johnson Foundation
Established as a national philanthropy in 1972 and today it is the largest US
foundation devoted to improving the health and health care of all Americans.
PO Box 2316
College Road East and Route 1
Princeton, NJ. 08543-2316
888-631-9989
www.rwjf.org
New Mexico Department of Health
www.health.state.nm.us
New Mexico Quality Data:
www.nmhhsa.org
New York State
Department of Health (Includes Quality Data)
www.health.state.ny.us/home.html
New York State Department of Health
Info for Researchers
www.health.state.ny.us/nysdoh/research/research.htm
Center for Justice and Democracy
Non-profit, non-partisan public interest organization that works
to educate the public about the importance of the civil justice system and the
dangers of so-called "tort reforms." CJ&D fights to protect the
right to trial by jury and an independent judiciary for all Americans. CJ&D,
which is funded by subscriptions, memberships, donations and foundation grants,
is not connected to any business or trial lawyer organization.
P.O. Box 3326 Church Street Station
New York, N.Y. 10008-3326
E-mail: info@centerjd.org
(212) 267-2801 or 888-450-5545
www.centerjd.org
Center for Medical Consumers
Non-profit advocacy organization active in both statewide and national efforts
to improve the quality of health care. We are entirely supported by private
donations, newsletter subscriptions, and the generous support of the Judson
Memorial Church
130 Macdougal St.
New York, NY. 10012
(212) 674-7105
www.medicalconsumers.org
Consumer Guides & Rights www.medicalconsumers.org/pages/links.html#consumer
Committee to Reduce Infection Deaths
A non-profit
organization devoted solely to reducing hospital infection rates.
1111 Park Avenue
Suite 13-C
New York, NY. 10128
www.hospitalinfection.org
Commonwealth Fund
Private Foundation Supporting Independent Research on Health and Social Issues
One East 75th St.
New York, NY. 10021
(212) 606-3800
www.cmwf.org
April 2002: Study Estimates 8
million American Families Experienced a Serious
Medical or Drug Error
www.cmwf.org/media/releases/davis534_release04152002.asp
Health Care Choices
New York not-for-profit corporation dedicated to educating the public about the
nation's health care system. Their goal is to assist patients, consumers and
other purchasers of health care services (such as employers) understand and
navigate the complexities of this system. Includes links to physician profiling
in numerous states.
PO Box 21039 Columbus Circle Station
New York, NY. 10023
www.healthcarechoices.org
Med-Malpractice
The Speken family shares their story of loss from both the
consumer and provider perspectives.
www.med-malpractice.com
www.med-malpractice.com/preface.htm
LeapforPatientSafety.Org
"We are a non-profit organization whose goal is to promote patient safety
awareness and prevent medical errors"
http://leapforpatientsafety.org/about.html, email: GCACNY@aol.com
Public Agenda Online
Nonpartisan, nonprofit public opinion research and citizen
education organization with 2 missions: A.) To help public officials and leaders
understand the public point of view on major policy issues. B.) To help citizens
understand critical policy issues.
6 E. 39 St.
New York, NY. 10016
(212) 686-6610
www.publicagenda.org
PULSEAmerica
P.U.L.S.E. Inc. is a nonprofit organization for the survivors and victims of
medical errors, adverse events and substandard health care. Members and
participants are encouraged to use their experience to educate and advocate for
a safer healthcare system.
PO Box 353
Wantagh, NY. 11793
(516) 579-4711
www.pulseamerica.org
Chat Room http://hometown.aol.com/pulse516/Chatroom.html
North Carolina Department of Health & Human
Services
www.dhhs.state.nc.us
North Carolina Center for Health Statistics
www.schs.state.nc.us/SCHS
North Carolina Quality Data:
www.NCHospitalQuality.org
North Dakota Department of Health
www.health.state.nd.us
Ohio Department of Health
www.odh.state.oh.us
Ohio Quality Data:
www.ohanet.org/portal/default.htm
Henry the Hand Foundation
11714 US Rte 42
Cincinnati, OH. 45241
Email:
dr.will@henrythehand.com
Ohio Patient Safety Institute
Ohio Health Council
www.ohiopatientsafety.org
Oklahoma State Department of Public Health
www.health.state.ok.us
Oklahoma Center for Consumer and Patient Safety
PO Box 4481
Tulsa, OK 74159
office: 800-994-6025
facsimile 918-512-4208
www.okccps.org
Oregon Department of Human Services, Public
Health
www.ohd.hr.state.or.us
Oregon Department of Human Services - Data
www.dhs.state.or.us/data
Oregon Quality Data:
www.orhospitalquality.org
Foundation for Accountability (FACCT)
Not-for-profit organization dedicated to helping Americans make better health
care decisions.
1200 NW Naito Parkway, Suite 470
Portland, OR. 97209
(503) 223-2228
www.facct.org
Pennsylvania Department of Public Health
http://webserver.health.state.pa.us/health/site
Emergency Care Research
Institute (ECRI)
5200 Butler Pike
Plymouth Meeting, PA. 19462-1298
(610) 825-6000
www.ecri.org
www.mdsr.ecri.org (Medical Device Safety Reports)
Maureen's Mission began with a promise Bill Thiel made to his wife,
Maureen, before she died. Maureen asked him to make sure he told her story so
that other women wouldn’t have to face the same fate as her. She didn’t want her
life - or her death - to be in vain. She did not want another woman to have to suffer
the pain she dealt with due to her misdiagnosis of breast cancer.
554 Oberdorfer Road
West Pittston, PA. 18643
(570) 388-1058
Bill Theil, Executive Director, Email:
Wthiel1106@aol.com
www.MaureensMission.org
Pennsylvania Health Care
Cost Containment Council
Interactive Hospital Performance Report
www.phc4.org/idb/HPR
Pennsylvania Patient Safety Authority
Patient Safety Reporting System:
www.psa.state.pa.us
539 Forum Building
PO Box 8410
Harrisburg, PA. 17120
(717) 346-0469
Pennsylvania Patient Safety Collaborative
The Healthcare Alliance of Pennsylvania
The collaborative is a network of 27 organizations representing health care
providers, insurers, organized labor, private industry, and consumers whose goal
is to address the systematic issues that lead to medical errors and to work to
reduce patient injury from errors through identification and correction of the
causes of medical errors.
4750 Lindle Road
Harrisburg, PA 17105-8600
(717) 561-5235
www.papatientsafety.net
www.haponline.org/quality/safety/papsc
Peoples Medical Society
Nonprofit organization dedicated to educating YOU, the consumer, about health
care and your medical rights.
462 Walnut St.
Allentown, PA. 18102
(610) 770-1670
www.peoplesmed.org
Your Medical Rights "How to Become an Empowered Consumer"
Charles B. Inlander & Eugene I. Pavalon, People's Medical Society 1994 (out
of print, but
used copies available at Amazon.Com)
Rhode Island Department of Health
www.health.state.ri.us
Rhode Island Quality Data:
http://hari.org/quality.shtml
South Carolina Department of Health & Human
Services
www.dhhs.state.sc.us
South Carolina Office of Research and
Statistics
Health & Demographics Section
www.ors2.state.sc.us
Mothers Against Medical Error
Columbia, SC.
Helen Haskell, email:
mamemoms@gmail.com
(803) 254-8804
South Dakota Department of Health
www.state.sd.us/doh/index.htm
Tennessee Department of Health
www.state.tn.us/health
Tennessee Improving Patient Safety (TIPS)
Tennessee Department of Health
425 Fifth Avenue North
Cordell Hull Building, 1st Floor
Nashville, TN. 37247-0501
(615) 741-5542
Texas Department of Health
www.tdh.state.tx.us
Texas Health Care Information Council
THCIC's primary purpose is to provide data that will enable
Texas consumers and health plan purchasers to make informed health care
decisions. The Council's charge is to collect data and report on the quality
performance of health maintenance organizations operating in Texas and
hospitals. The goal is to provide information that will enable consumers to have
an impact on the cost and quality of health care in Texas.
http://www.thcic.state.tx.us/Reports.htm
American Iatrogenic Association (AIA)
Promoting Accountability for Medical Professionals and Institutions
2513 S. Gessner #232
Houston, TX. 77063-2096
www.iatrogenic.org
Patient Safety Advocates of Texas (PSAT)
Network of Texans that aims to be an effective and united voice to protect Texas
patients and improve medical care.
1-888-738-4226
www.texaswatch.org/familysafety_main.asp?insur_id=105&display=true
Patient Safety Institute
Non-profit, collaborative and voluntary initiative that combines the power of
technology and the strength of patient-provider relationships to improve care
and lower the costs of healthcare.
555 Republic Drive, Suite 200
Plano, TX. 75074
(972) 444-9800
www.ptsafety.org
StopHospitalInfections.Org
(512) 477-4431
Texas A&M University
System Health Science Center
Institute of Healthcare Evaluation
Quality & Patient Safety Initiatives
1716 Briarcrest Drive, Suite 702
Bryan, TX. 77802
(979) 458-0537
Texas Patient Safety Alliance
4410 Medical Drive, #440
San Antonio, TX. 78229
(210) 575-6785
University of Texas Medical Branch (UTMB)
Information about the UTMB patient safety task force & links to patient
safety organizations and information.
301 University Boulevard
Galveston, TX. 77555
Phone: (409) 772-2618 or (800) 228-1841
Fax: (409) 772-6216
www.utmb.edu/patientsafety
The University of
Texas Center of Excellence for Patient Safety Research and Practice
A
multi-institutional and multi-disciplinary project dedicated to improving
healthcare for providers and patients.
www.uth.tmc.edu/schools/med/imed/patient_safety/index.htm
Utah Department of Health
http://hlunix.hl.state.ut.us
Utah Patient Safety Consortium
Deputy Health Commissioner
Utah Department of Health
PO Box 141000
Salt Lake City, UT 84114-1000
(801) 538-6111
Utah Indicator Based Information System
IBIS - Query System
http://hlunix.hl.state.ut.us/ibisq/entrybody.htm
National Association of Health Data Organizations
Not-for-profit membership organization dedicated to strengthening
the nation's health information system. NAHDO serves as a broker of expertise
for the development and enhancement of statewide and national health information
systems. NAHDO brings together a network of state, federal, and private sector
technical and policy leaders and consultants to expand health systems
development and shape responsible health information policies.
375 Chipeta Way Suite A
Salt Lake City, Utah 84108
Phone: 801-587-9104 (main line)
E-mail: nahdoinfo@nahdo.org
www.nahdo.org
State of Vermont - Department of Health
www.healthyvermonters.info
Vermont Quality Data:
www.vahhs.org/Act53/Act53Main.htm
Virginia Department of Health
www.vdh.state.va.us
Virginia Center for Health Statistics
The Virginia Center for Health
Statistics collects and disseminates vital records
data, conducts research and produces reports which help guide health policy
issues affecting the Commonwealth. Communicating health information to the
public and health officials in a user-friendly and cost effective format is one
of our top goals.
www.vdh.state.va.us/healthstats/index.asp
National Patient
Safety Foundation
8405 Greensboro Dr, Ste 800
McLean, VA. 22102-5120
(703) 506-3280
www.npsf.org
To join their list
serv: http://npsf.org/html/join_in.html
National On Line Fact Sheets & Brochures in Patient Safety
www.npsf.org/html/online_resources.html
You Can Help Improve Patient Safety
www.npsf.org/html/patients.html#what
Preventing Infections in the Hospital
www.npsf.org/download/PreventingInfections.pdf
Role of the Patient Advocate
www.npsf.org/download/PatientAdvocate.pdf
Safety as You Go from Hospital to Home
www.npsf.org/download/SafetyAsYouGo.pdf
Center for Patient Advocacy
Online resource for the latest news on the health care debate in
Washington and helpful consumer information and advice.
1350 Beverly Road, Suite 108
McLean, VA. 22101
(703) 748-0400 or 1-800-846-7444
E-mail: advocate@patientadvocacy.org
www.patientadvocacy.org/section_fs.htm?section=pat_resource
Virginia Health Information
VHI has information and data on Virginia hospitals, health
insurance types, HMOs, nursing facilities, physicians, retirement centers and
other health care providers. Learn more about care options, compare services
offered, and help choose health care providers. VHI also licenses databases and
creates special reports for employers, researchers, consultants, and health care
providers.
www.vhi.org
Virginia Health Quality Center
4510 Cox Road, Suite 400
Glen Allen, VA. 23060
(804) 289-5320
www.vhqc.org
www.vhqc.org/index/consumers
Virginians Improving Patient Care and Safety (VIPC&S)
4205 Dover Rd.
Richmond, VA. 23221
(804) 353-2721 ext. 138
www.vipcs.org
Tips on safeguarding your health
care:
Medicines: www.vipcs.org/patients/medicine.htm
Hospital Stays: www.vipcs.org/patients/hospitals.htm
Surgery: www.vipcs.org/patients/surgery.htm
Home Health Equipment: www.vipcs.org/patients/homehealth.htm
General Safety: www.vipcs.org/patients/end.htm
Washington State Department of Health
www.doh.wa.gov
Washington State Department of Health
Center for Health Statistics - Hospital and Patient Data Section
HPDS is responsible for collecting and publishing critical
information that is needed to help Washingtonians live healthier lives. By
providing access to current, high quality health data that covers community
hospitals in Washington State, CHS\HPDS enables people to make better informed
decisions about healthcare and health plans. These data are also used by policy
makers, health professionals, community-based organizations, and researchers to
understand trends, identify high risk populations (and geographic areas), set
prevention priorities, and plan targeted health promotion strategies.
www.doh.wa.gov/EHSPHL/hospdata
Washington Quality Data:
www.wahospitalquality.org
Washington State Pharmacists Association
117 E. Louisa St., #424
Seattle, WA 98102
www.pharmcare.org
Northwest Medication Safety Council
www.pharmcare.org/consumer/nwmsc/nwmsc.html
Site offers some basic tips to consumer and professionals for improving
medication safety.
West Virginia Department of Health and Human
Services
www.wvdhhr.org
West Virginia Hospital Association
Patient Safety Task Force
100 Association Drive
Charleston, WV. 25311
(304) 344-9744
Wisconsin Department of Health and Family
Services
www.doh.wa.gov
Wisconsin Healthcare Information Center
This page offers information relating to the collection,
analysis and dissemination of data about hospitals; hospital discharges; planned
outpatient surgeries; and physicians, nurses, and certain other health care
providers.
www.dhfs.state.wi.us/healthcareinfo
Center for Patient Partnerships
National resource for strengthening the consumer perspective in health care and
building more effective partnerships among patients, providers, and other
stakeholders. We advocate change in health care practice and systems, so care is
more patient-centered and consumer driven. We are committed to empowering
patients as equal partners with health care providers.
975 Bascom Mall, Suite 4311
Madison, WI. 53706
(608) 265-6267
www.law.wisc.edu/patientadvocacy/advocacy.html
Madison Patient Safety Collaborative
Collaborative effort through which area healthcare providers work together to
develop and implement solutions designed to improve the quality and safety of
patient care provided in the Madison, WI. community.
202 S. Park St.
Madison, WI. 53715
(608) 267-5889
www.madisonpatientsafety.org
Wisconsin Patient Safety Institute
330 E Lakeside St.
Madison, WI. 53715
(608) 283-5497 or 800-762-8976
www.wpsi.org
Wyoming Department of Health
http://wdhfs.state.wy.us/WDH
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