www.griefcompanion.org The site
features writings from a variety of classic and contemporary writers that
grieving people have found helpful and comforting. This includes five
full-length books which can be freely downloaded and a "Sharing Board" to
share your loss and grief with others.
NEW: Mourning Has Broken:
A Collection of Creative Writing about Grief and Healing
Kope Associates: Mara Koven and Liz Pearl, Editors, Forword by Alan
Wolfelt, PhD
http://at.yorku.ca/kope/mhb.htm
Healing after Grief
"Helping
Children Cope with the Loss of a Loved One: A Guide for grownups"
by
William Kroen, Free Spirit Publishing, 1996
"The
Grieving Child: A Parent's Guide"
by Helen Fiztgerald, Simon and Schuster, 1992
"How
Can I Help? How to Support Someone Who is Grieving"
by June Cerza Kolf, Fisher Books, (Practical advice for friends and
relatives of someone who is mourning a loss)
"I Can't Stop Crying " by
John D. Martins and Frank D. Ferris, MD, Key Porter Books Unlimited, 70 The Esplanade, Toronto, Ontario Canada
M5E1R2
"Living
with Grief: Children, Adolescents and Loss" edited
by Kenneth Doka, Hospice Foundation of America, 2000
"Recovering
After Loss" by Bob
Deits, MJF Books, New York '2000
"Remembering
with Love: Messages of Hope for the First Year of Grieving and
Beyond" by Elizabeth Levand and Sherokee Isle, Fairview
Press, 1995
"What
if God were the Sun?" by John Edwards,
Jodere Group, 2000. A poignant novel
sharing experiences of a family dealing with the deaths of loved ones.
Consumer Health Care Rights
The American Bar Association
Complete and Easy Guide to Health Care Law
(Your guide to protecting your rights as a patient, dealing with hospitals, health insurance,
Medicare and more)
2001, Three Rivers Press, NY
The Consumer's Legal Guide to Today's Healthcare
"Your Medical Rights & How to Assert them"
Stephen L. Isaacs, J.D. & Ava C. Swartz, M.P.H.
Houghton Miffin Co. 1992 Boston-NY-London
Your Medical Rights "How to Become an Empowered Consumer"
Charles B. Inlander & Eugene I. Pavalon
People's Medical Society
1994 (out of print, but used copies available at Amazon.Com)
www.ncvc.org/gethelp/griefchildren
www.aacap.org/publications/factsfam/grief.htm
www.kidsource.com/sids/grief.html
http://users.erols.com/lgold/info.htm
www.education.ucsb.edu/jimerson/2002WSPA_longgriefhandout.pdf
|
Post -Traumatic Stress Disorder
(PTSD)
|
Coping with
Trauma: A Guide to Self-Understanding by Jon G. Allen
1999 American Psychiatric Press, Inc. 1400 K St., N.W., Washington, DC.
20005 ISBN 0-88048-996-0
"Growing
Beyond Survival: A Self-Help Toolkit for Managing Traumatic
Stress" by Elizabeth G. Vermilyea, Sidran, (Not
specific to medical error - Includes exercises designed to help survivors
understand and overcome trauma)
"The
Post-Traumatic Stress Disorder Sourcebook: A Guide to Healing, Recovery
and Growth" by Glen R. Schiraldi, Ph.D., McGraw-Hill,
(A
clear A-Z guide to PTSD)
"Trauma
and Recovery" by Judith Herman, M.D., Basic
Books
American Psychological Association
Website includes tips for recovering from disaster and
guidelines for helping kids cope with lingering fears
1-800-964-2000 www.helping.apa.org
Gift From
Within
l6 Cobb Hill Road
Camden, ME 04843 USA
(207) 236-8858 ph
(207) 236-2818 fax
www.giftfromwithin.org
www.ptsdinfo.org
Survivor Psalm http://www.giftfromwithin.org/html/poems.html
Recovery from an unnatural death
http://www.giftfromwithin.org/html/recovery.html
International
Society for Traumatic Stress Studies
60 Revere Drive, Suite 500
Northbrook, Illinois 60062 USA
(847) 480-9028
istss@istss.org
www.istss.org
National Center for Post-Traumatic Stress Disorder
802-296-5132 www.ncptsd.org/disaster.html
Post-Traumatic Stress Disorder Alliance Resource
Center
877-507-PTSD www.ptsdalliance.org
Sidran Institute
A leader in traumatic stress education and
advocacy. Nationally-focused nonprofit organization devoted to helping people who have
experienced traumatic life events. Referrals for PTSD counselors, library
and free information on PTSD (Not specific to medical error)
200 E. Joppa Road, Suite 207
Towson, MD 21286 USA
(410) 825-8888
www.sidran.com
Bereaved Families of Ontario
(416)
440-0290
Compassionate Friends
National
nonprofit self-help support organization assisting families toward the
positive resolution of grief following the death of a child of any age. There
is no religious affiliation and there are no membership dues or fees.
1-877-969-0010
www.compassionatefriends.org
Families
Advocating Injury Reduction (F.A.I.R.)
Organization dedicated to protecting the rights of consumers and
workers; who seek to organize and empower injury victims and their families
through advocacy and public policy. In addition to opposing limitations on
the legal rights of victims, FAIR is committed to developing and building public
support for policies that promote: safer consumer products, safety in the
workplace, and better quality health care.
Chicago Area (708) 354-8741
Downstate IL. (217) 352-6533
www.illinoisfair.org
Hospices:
Info. on Canadian, American & International Hospices and Related
Services 800-331-1620
National Hospice
Foundation
1700 Diagonal Rd, Suite 625
Alexandria, VA 22314
(703) 516-4928
www.hospiceinfo.org
E-mail: info@nhpco.org
National
Hospice & Palliative Care Organization: Grief & Bereavement
Guides On-line
http://www.nhpco.org
Medical Error Survivor
Support
E-mail: messup@optusnet.com.au
http://groups.msn.com/messup
Medically Induced Trauma Support
Services (MITSS), Inc.
Supports, educates, trains, and offers assistance to individuals
affected by medically induced trauma.
PO Box 343
Mansfield, MA 02048
Tel: 1-508-337-2900
Toll Free: (888) 36-MITSS
www.mitss.org
Medically
Injured Survivors Support, Education, & Discussion (M.I.S.S.E.D.)
www.misdiagnosed.com
National Self-Help Clearinghouse
Not-for-profit
organization that was founded in 1976 to facilitate access to self-help groups
and increase the awareness of the importance of mutual support www.selfhelpweb.org
(212) 840-1259
PULSEAmerica
P.U.L.S.E. Inc. is a nonprofit
organization for the survivors and victims of medical errors, adverse events and
substandard health care. Members and participants are encouraged to use their
experience to educate and advocate for a safer healthcare system
PO Box 353, Wantagh, NY. 11793 (516) 579-4711
www.pulseamerica.org
Chat Room http://hometown.aol.com/pulse516/Chatroom.html
Talk About Medical Experiences (T.A.M.E.)
Nonprofit organization that advocates and publicly
targets medical errors, discrimination, and abuse in the medical care
delivery system, to the extent that recipients and former recipients of medical
care may need assistance to support and protect their rights
Pres. & CEO, Dr. J.
Talbert
PO Box 6850
Washington, DC 20020
(202) 678-6038
www.tameinc.org
Association of Trial
Lawyers of America
"Keep our
Families Safe: Consumer News for Families"
http://www.atla.org/public/columns/mederr.ht
The Leonard M. Ring Law Center
1050 31st Street, NW
Washington, DC. 20007
800-424-2725
E-mail:
info@atlahq.org
www.atla.org
The Ames Hymns Collection
http://junior.apk.net/~bmames/hymnsjs.htm?n
Blessed
Assurance" was an old hymn written by Fanny Crosby blinded by an
incompetent doctor at six weeks of age. She wrote over 8,000 hymns and spent her
life time advocating for the blind and poor.
Amazing Grace
http://junior.apk.net/~bmames/ht0053_.htm
