Quality Health Care Resources
Administrators In
Medicine (AIM)
Public online national
physician database whose direct source of data is from the state government
licensing board. It is free of charge to the public. DocFinder
contains the licensing background and disciplinary information of physicians and
other health care practitioners with detailed Medical Malpractice, Hospital
Discipline and Criminal Conviction information from Physician Profile Law states.
www.docboard.org
Agency for Healthcare Research and Quality
Center for Quality Improvement & Patient Safety
The Nation's Lead Federal Agency for Research on Health Care
Quality, Costs, Outcomes, and Patient Safety
540 Gaither Road
Rockville, MD, 20850
(301) 427-1364
www.ahrq.gov
Medical Errors & Patient Safety
www.ahrq.gov/qual/errorsix.htm
5 Steps to Safer Health Care
http://www.ahrq.gov/consumer/5steps.htm
20 Tips to Prevent Medical Error
http://www.ahrq.gov/consumer/20tips.htm
Questions to ask your Surgeon before
Surgery
http://www.ahrq.gov/consumer/surgery.htm
A guide for Patients and Families: Improving Health Care
Quality
http://www.ahrq.gov/consumer/qntlite
20 Tips to Help Prevent
Medical Errors in Children
http://www.ahrq.gov/consumer/20tipkid.htm
Medical Errors - The Scope of the Problem
www.ahrq.gov/qual/errback.htm
AHRQ PSNet (http://psnet.ahrq.gov/about.aspx)
features the latest news and essential resources on patient safety. The site
offers weekly updates of patient safety literature, news, tools, and meetings,
and a vast set of carefully annotated links to important research and other
information on patient safety.
AHRQ WebM&M (http://webmm.ahrq.gov/),
the online patient safety journal, features expert analysis of medical errors
reported anonymously by our readers, interactive learning modules on patient
safety, and forums for online discussion.
AARP
Administers programs that assist older Americans
601 E St. N.W.
Washington, DC. 20049
www.aarp.org
Medical Error
and Patient Injury: Costly and Often Preventable
http://research.aarp.org/health/ib35_medical_prn.html
Free Brochures:
Choosing Good Care: A Family Guide to Finding a Nursing Home
(D17064)
Solving Nursing Home Problems: A Guide for Families (D17065)
Partners in Caring: A Family Guide to Working with Nursing
Assistants for
Better Nursing Home Care (D17310)
American Board of
Medical Specialties
ABMS maintains a list
of all board certified diplomates. Information about a physician's certification
status can be obtained by referring to: www.abms.org/login.asp
1007 Church
Street, Suite 404
Evanston, IL. 60201-5913
Phone Verification (866) ASK-ABMS
(847) 491-909
www.abms.org
American Health Information Management
Association
General information on medical
records and state statutes regarding patient access
919 North Michigan Avenue #1400
Chicago, IL 60611
(312) 787-2672
www.ahima.org
American Iatrogenic Association (AIA)
Promoting Accountability for Medical Professionals and Institutions
2513 S. Gessner #232
Houston, TX. 77063-2096
www.iatrogenic.org
Americans Mad and Angry
Americans Mad and Angry! is a non-profit, non-partisan
healthcare consumer activist organization. We provide timely and meaningful
fact-based information and resources to help people become more knowledgeable
about medical errors, hospital acquired infections, other preventable adverse
events and the lack of disclosure and accountability in our healthcare system.
Email:
info@americansmadandangry.org
www.americansmadandangry.org
Arkansas Patient Safety Initiative
Arkansas Foundation for Medical Care
401 W. Capital, Suite 410
Little Rock, AR 72201
(501) 375-5700
Association of Dialysis Advocates (ADA)
Association
of Dialysis Advocates is a grassroots organization comprised of
volunteers dedicated to patient advocacy. We are committed to advocating on
behalf of patients and their families to ensure delivery of safe and quality
dialysis treatments. Association of Dialysis
Advocates is dedicated to ensuring that patients are encouraged and
empowered–through education–to make informed decisions and to take increased
responsibility for the medical care that impacts their lives.
(225) 355-5379 • Toll Free: (877) 359-5379
www.assndialysisadvocates.org
Association of Trial
Lawyers of America
"Keep
our Families Safe: Consumer News for Families" www.atla.org/public/columns/mederr.htm
Activist Center
www.atla.org/ActivistCenter/ActivistCenter.aspx
The Leonard M.
Ring Law Center
1050 31st Street, NW
Washington, DC. 20007
800-424-2725
E-mail: info@atlahq.org
www.atla.org
California Healthcare Foundation
www.chcf.org/topics/index.cfm?topic=CL143
California Institute for Health
Systems Performance
1215 K Street, Suite 800
Sacramento, CA 95814
(916) 552-7642
www.cihsp.org
California Patient's Guide:
Your Health Care Rights and Remedies
Foundation for Taxpayer & Consumer Rights
1750 Ocean Park Blvd., Suite 200
Santa Monica, CA. 90405
(310) 392-0522
www.calpatientguide.org
Carter
Center
The Carter Center, in partnership with Emory
University, is guided by a fundamental commitment to human rights and the
alleviation of human suffering; it seeks to prevent and resolve conflicts,
enhance freedom and democracy, and improve health.
Public Information Office
One Copenhill
453 Freedom Parkway
Atlanta, GA. 30307
www.CarterCenter.org
Center for
Information Law and Policy at Chicago-Kent College of Illinois Institute of
Technology
The Federal
Web Locator is a comprehensive web guide to federal agencies, quasi-official
agencies, boards, commissions, committees and non-government federally related
sites.
www.infoctr.edu/fwl
Center for Justice and Democracy
Non-profit,
non-partisan public interest organization that works to educate the public about
the importance of the civil justice system and the dangers of so-called
"tort reforms." CJ&D fights to protect the right to trial by jury
and an independent judiciary for all Americans. CJ&D, which is funded by
subscriptions, memberships, donations and foundation grants, is not connected to
any business or trial lawyer organization.
P.O. Box 3326 Church Street Station
New York, N.Y. 10008-3326
E-mail: info@centerjd.org
(212) 267-2801 or 888-450-5545
www.centerjd.org
Center for Medical Consumers
Non-profit advocacy organization active in both statewide and
national efforts to improve the quality of health care. We are entirely
supported by private donations, newsletter subscriptions, and the generous
support of the Judson Memorial Church
130 Macdougal Street
New York, NY. 10012
(212) 674-7105
www.medicalconsumers.org
Consumer Guides & Rights www.medicalconsumers.org/pages/links.html#consumer
Center for Patient Advocacy
Online resource for the latest news on the health care debate in
Washington and helpful consumer information and advice
1350 Beverly Road, Suite 108
McLean, VA. 22101
(703) 748-0400 or 1-800-846-7444
E-mail: advocate@patientadvocacy.org
www.patientadvocacy.org/section_fs.htm?section=pat_resource
Center for
Patient Partnerships
National
resource for strengthening the consumer perspective in health care and building
more effective partnerships among patients, providers, and other stakeholders.
We advocate change in health care practice and systems, so care is more
patient-centered and consumer driven. We are committed to empowering patients as
equal partners with health care providers
975
Bascom Mall, Suite 4311
Madison, WI. 53706
(608) 265-6267
www.law.wisc.edu/patientadvocacy/advocacy.html
Centers for Disease Control
1600 Clifton
Rd.
Atlanta, GA. 30333
(404) 639-3311
www.cdc.gov
www.cdc.gov/ncidod/hip
Division of Healthcare Quality Promotion
www.cdc.gov/health/disease.htm
Research Medical Diseases
Chicago Patient Safety Institute
www.chicagopatientsafety.org
Citizens for Health
National organization
representing consumers on issues of choice, access, information and safety for
natural health products and therapies
5 Thomas Circle NW, Suite 500
Washington, DC. 20005
(202) 483-1652
www.citizens.org
Citizens for Medical Safety
Activists for medical
malpractice victims throughout the country who believe that change in healthcare
can only be achieved by working through the political process.
www.citizens-for-medical-safety.com
Coalition
to Protect America's Elders
Coalition creating
public awareness of the conditions in our Nation's nursing homes and proposing
effective solutions for improving the care and treatment for nursing home
residents
8094
Buck Lake Road
Tallahassee, FL. 32311
www.protectelders.org
Colorado Patient Safety Coalition
Links to patient safety resources & ongoing activities in
Colorado
(303) 360-1743
http://www.coloradopatientsafety.org
Committee to Reduce Infection Deaths
A
non-profit organization devoted solely to reducing hospital infection rates.
1111 Park Avenue
Suite 13-C
New York, NY. 10128
www.hospitalinfection.org
Commonwealth Fund
Private Foundation Supporting Independent Research on
Health and Social Issues
One East 75th St.
New York, NY. 10021
(212) 606-3800
www.cmwf.org
April 2002: Study Estimates 8 million American
Families Experienced a Serious Medical or Drug Error www.cmwf.org/media/releases/davis534_release04152002.asp
Connecticut Center for Patient Safety
PO Box 231335
Hartford, CT. 06123-1335
800-251-7444
www.ctcps.org
Consumers Advancing Patient Safety
(CAPS) is a consumer-led nonprofit organization formed
to be a collective voice for individuals, families and healers who wish to
prevent harm in healthcare encounters through partnership and collaboration.
CAPS
envisions creating global healthcare systems that are safe, compassionate &
just.
One W. Superior Street, Suite 2410
Chicago, IL 60610
Phone: 312-274-1301
Fax: 312-274-9696
Email: info@patientsafety.org
Consumer Justice Group
"Dedicated to raising public awareness about birth injuries nation-wide"
Email:
cassie@consumerjusticegroup.com
www.consumerjusticegroup.com/birthinjury/index.html
Department of
Defense (DOD)
Armed Forces
Institute Pathology
Patient Safety Center
1335 East West Highway, Suite 6-100
Silver Spring, MD. 20910-9813
(800) 863-3263 or (301) 295-7242
www.defenselink.mil
www.afip.org/PSC
Patient Safety Workgroup
Emergency Care
Research Institute (ECRI)
5200 Butler Pike
Plymouth Meeting, PA. 19462-1298
(610) 825-6000
www.ecri.org
www.mdsr.ecri.org (Medical Device Safety Reports)
Families Advocating Injury Reduction (F.A.I.R.)
Organization dedicated
to protecting the rights of consumers and workers; who seek to organize and
empower injury victims and their families through advocacy and public policy.
In addition to opposing limitations on the legal rights of victims, FAIR is
committed to developing and building public support for policies that promote:
safer consumer products, safety in the workplace, and better quality health
care.
Chicago Area (708) 354-8741
Downstate IL. (217) 352-6533
www.illinoisfair.org
Families USA
Advocates for
high-quality, affordable health care
1334 G Street, NW
Washington DC. 20005
(202) 628-3030
www.familiesusa.org
1stDoNoHarm.org
National Organization for
Healthcare Industry Accountability and Reform in Medicine
Our mission is to make healthcare safe for all by becoming a viable,
visible part of the debate and decision making regarding the root causes of
and solutions for the epidemic number of medical mistakes. Patients and
families continue to be the fallen victims of an ever-escalating medical
malpractice crisis which can only be stopped by restoring patients' unabridged
civil rights to redress in the civil courts and through simultaneously
mandating both individual providers' and hospital organizations: 1)
Responsibility for ensuring patient safety, and 2) full accountability for
medical error harm. www.1stDoNoHarm.org
Contact Patti @ E-mail: pattioregan@netscape.net
Florida Hospital Association
Patient Safety Steering Committee
307 Park Lake
P.O. Box 531107
Orlando, Fl 32853-1107
407 841-6230
www.fha.org/quality
Floridians for Patient Protection (FPP)
Represents the essence of the spirit found across America for citizens to
unite, stand up and protect the rights and responsibilities of all in our
democracy. FPP is a proactive organization of medical malpractice and negligence
victims and their families striving for justice and change in Florida's medical
care system.
www.floridiansforpatientprotection.org
Foundation for Accountability (FACCT)
Not-for-profit organization
dedicated to helping Americans make better health care decisions
1200 NW Naito Parkway, Suite 470
Portland, OR. 97209
(503) 223-2228
www.facct.org
Friends' Health Connection (FHC)
Nonprofit support network that connects people with similar health problems
for the purpose of mutual support
PO Box 114
New Brunswick, NJ. 08903
1-800/48-FRIEND (483-7436)
www.48friend.com
Georgia Hospital Association
Partnership for Health & Accountability
1675 Terrell Mill Road
Marietta, GA 30067
(770) 955-0324
www.gha.org
Health and Social
Campaigners’ Network international
(HSCNetwork international)
The global
virtual network for health advocates
c/o PatientView
Woodhouse Place
Upper Woodhouse
Knighton
Powys, LD7 1NG, Wales
Tel: 0044-(0)1547-520-965
Fax: 0044-(0)1547-528-501
Email:info@patient-view.com
www.patient-view.com/hscnetwork.htm
Health Advocacy Program of Study
Sarah Lawrence College offers the nation's only master's
degree program in health advocacy
E-mail: health@mail.slc.edu
Course Description: www.slc.edu/~health/haprogram.htm
Healthcare Association of Hawaii
Patient Safety Task Force
932 Ward Avenue, Suite 430
Honolulu, HI 96814-2126
(808) 521-8961
HealthCareCoach.Com
A project of the National Health Law
Program (NHeLP), a non-profit legal organization. For more than 30 years, NHeLP
has worked to improve access to quality health care, educate consumers about
their legal rights and provide information and policy advocacy. Getting
the health care you and your family needs isn't always easy in a system that's
constantly changing. HealthCareCoach.com is packed with facts and do-it-yourself
tips on everything from health insurance to patient care - to help you help
yourself.
www.healthcarecoach.com
Health
Care Choices
New York not-for-profit corporation dedicated to
educating the public about the nation's health care system. Their goal is to
assist patients, consumers and other purchasers of health care services (such
as employers) understand and navigate the complexities of this system.
Includes links to physician profiling in numerous states
PO Box 21039 Columbus Circle
Station
New York, NY. 10023
www.healthcarechoices.org
Health Consumer Alliance
Resources for Consumers: www.healthconsumer.org/consumerlinks.html
405 14th St., 3rd Fl.
Oakland, CA. 94612
(510) 302-0445
Health Consumers'
Council of Western Australia
The Health Consumers' Council is
an independent community based organization representing the consumers' voice
in health policy, planning, research and service delivery. The Council
advocates on behalf of consumers to government, doctors, other health
professionals, hospitals and the wider health system. Their website aims
to provide consumers with a wealth of information on the services and
activities of the Health Consumers' Council, an opportunity to contact the
Council with any issues or concerns, and to provide useful information and
referrals to other websites.
Health Consumers' Council WA
(Inc)
GPO Box C134
PERTH WA 6839
Telephone: (08) 9221 3422
Email: info@hcc-wa.asn.au
www.hcc-wa.global.net.au/index2.html
HealthWeb
Health Data Resources by State
http://www.healthweb.state.me.us/st_health_res.asp
Healthwise is focused on one
thing—developing consumer
health content to help people make health decisions that are right for them.
Our writers, editors, and reviewers know that if consumer health content doesn't
help a person make a better decision, it doesn't really help. Healthwise
is uniquely able to help health plans, hospitals, physicians and clinics,
disease management companies, and other organizations empower their
constituents.
2601 N. Bogus Basin Rd.
Boise, Idaho, USA, 83702.
www.healthwise.org/about.aspx
Henry the Hand Foundation
11714 US Rte 42
Cincinnati, OH. 45241
Email:
dr.will@henrythehand.com
www.henrythehand.com
ImPRESSive
"A media tip sheet for advocates"
www.familiesusa.org/impress.htm
For printed copies write to: imPRESSive, c/o Families USA, 1334 G Street,
NW, Washington, DC. 20005 (202) 628-3030
Illinois Hospital Association
(IHA)
Site offers information on
medical errors in Illinois, including alerts, Spotlight on Safety Series,
reporting information, consumer resources, quality collaboratives, and links
to government reports.
P.O. Box 3015
Naperville, IL 60566
(630) 505-7777
www.ihatoday.org/public/patsafety
Institute for Family-Centered
Care
7900 Wisconsin Ave., Suite 405
Bethesda, MD. 20814
(301) 652-0281
www.familycenteredcare.org
Institute for Healthcare Improvement
Not-for-profit organization created to help lead the
improvement of health care systems, to increase continuously their quality and
value
20 University Road, 7th Floor
Cambridge, MA 02138
(617) 301-4800
www.ihi.org
Institute for Safe Medication
Practices (ISMP)
Alerts for Patients page containing a listing of frequent medication errors
and how to avoid them, general information and advice on medication safety for
consumers
www.ismp.org/Pages/Consumer.html
Institute for Self-Directed Care
Non-profit
organization whose mission is to assist all citizens in directing their own
healthcare; with a focus on patient safety initiatives and research.
95 India Street
Portland, Maine 04101
(207) 774-5916
www.selfdirectedcare.org
Institute of Medicine
Part of the National
Academy of Sciences; publishers of objective and authoritative information on a
variety of health topics.
2101 Constitution Ave., NW
Washington, D.C. 20418
www.iom.edu
Patient Safety: www.iom.edu/IOM/IOMHome.nsf/Pages/Quality+Initiative
Institute of Medicine's 1999 Report,
"To Err is Human"
http://books.nap.edu/html/to_err_is_human
Institute of
Medicine's Report "Crossing the Quality Chasm: A New Health System for the 21st Century"
www.nap.edu/catalog/10027.html
Iowa Dept. of Public
Health
Patient Safety Advisory Committee
321 East 12th Street
Des Moines, IA. 50319
(515) 281-8936
www.idph.state.ia.us/dir_off/csha/patientsafety.htm
Robert Wood Johnson Foundation
Established as a national philanthropy in 1972 and today it is
the largest US foundation devoted to improving the health and health care of all
Americans
PO Box 2316
College Road East and Route 1
Princeton, NJ. 08543-2316
888-631-9989
www.rwjf.org
Joint Commission on Accreditation of Healthcare Organizations
Public Access page with
information on quality standards for consumers, providers, employers and
purchasers
www.jcaho.org (Home Page)
www.jcaho.org/sentinel/se-stats.html
(Sentinel Event Statistics)
www.jcaho.org/speakup_bro_mpfrm.html (Speak Up Campaign for Patients and
Consumers)
www.jcaho.org/general+public/patient+safety/gp_05_npsgs.htm
(2005 Patient Safety Goals)
Kaiser Family Foundation
The Henry J. Kaiser Family
Foundation is an independent philanthropy focusing on the major health care
issues facing the nation
2400 Sand Hill Rd.
Menlo Park, CA. 94025
(650) 854-9400
www.kff.org
Harvard School of Public Health and Henry J. Kaiser Family
Foundation
News Release, Dec. 12, 2002
4 in 10 of Public, More than one-third of Physicians say they have personally
experienced medical errors
www.kff.org/content/2002/20021211a/Medical_Errors_Release.pdf
Kentucky
Watch is a non partisan, non profit, consumer advocacy
organization that promotes the education of citizens in Kentucky on the
legislative process and regulatory decision making. We work towards focusing
greater citizen, government, and media attention on healthcare and insurance
industries by pushing for stronger regulation, greater accountability and more
open access to information about how these industries discipline wrong doers,
set rates, correct errors and establish standards. Their
vision is for consumer driven systems that openly disclose healthcare outcomes,
insurance costs/rates and the establishment of standards.
112 Lakeview Court
Georgetown, KY 40324
(502)370-6657
Email:
director@kywatch.org
www.kywatch.org
LaurusHealth.Com
A guide to preventing medical errors
Leapfrog Group
Leapfrog initiatives to drive great leaps in patient
safety and healthcare quality
C/O Academy
1801 K. St., NW, Suite 701-L
Washington, DC. 20006
(202) 292-6713
www.leapfroggroup.org/safety.htm Patient Safety
Information
Madison Patient Safety Collaborative
Collaborative effort through
which area healthcare providers work together to develop and implement solutions
designed to improve the quality and safety of patient care provided in the
Madison, WI. community.
202 S. Park Street
Madison, WI 53715
608) 267-5889
www.madisonpatientsafety.org
Maine Quality Forum
In 2003 Governor Baldacci and your Maine Legislature
created the Maine Quality Forum, as an independent division of Dirigo Health, to
continue Maine's leadership in assuring high quality healthcare for its citizens.
The Maine Quality Forum's mission is to advocate for high quality
healthcare and help each Maine citizen make informed healthcare choices.
211 Water Street
53 State House Station
Augusta, ME. 04330
(207) 287-9900
www.mainequalityforum.gov/mqsp01f.html
Massachusetts
Coalition for the Prevention of Medical Errors
Initiated in
1997 as a statewide collaborative effort to improve patient safety and minimize
medical errors in
Massachusetts
5 New England
Executive Park
Burlington, MA. 01803-5096
(781) 272-8000 ext. 152
www.mhalink.org/mcpme/mcpme_welcome.htm
Maryland Patient
Safety Organization
This site is provided as a service to the public, health care
providers and policy makers who wish to be informed about regional initiatives
and developments relating to patient safety.
FMI: Delmarva Foundation
9240 Centerville Rd.
Easton,
MD.
(410) 822-0697
www.marylandpatientsafety.org
Maureen's Mission
Maureen's Mission began with a promise Bill Thiel made to his wife,
Maureen, before she died. Maureen asked him to make sure he told her story so
that other women wouldn’t have to face the same fate as her. She didn’t want her
life - or her death - to be in vain. She did not want another woman to have to suffer
the pain she dealt with due to her misdiagnosis of breast cancer.
554 Oberdorfer Road
West Pittston, PA. 18643
(570) 388-1058
Bill Theil, Executive Director, Email:
Wthiel1106@aol.com
www.MaureensMission.org
Med Help International - The Patient
Medical Information Center
Dedicated to helping patients find the highest quality medical information in
the world today. Offering patients the tools necessary to make informed
treatment decisions within the short time lines dictated by their illness or
disease
6300 North Wickham Rd.
Suite 130, PMB #188
Melbourne, FL. 32940
(321) 259-7505
www.medhelp.org
Med-Malpractice
The Speken family shares their
story of loss from both the consumer and provider perspectives
www.med-malpractice.com
www.med-malpractice.com/preface.htm
Medical Error
Reduction.Com
www.medicalerrorreduction.com
Medically Induced Trauma Support
Services (MITSS), Inc.
Supports, educates, trains, and offers assistance to individuals
affected by medically induced trauma
PO Box 343
Mansfield, MA 02048
Tel: 1-508-337-2900
Toll Free: (888) 36-MITSS
www.mitss.org
Medicare
The
Official U.S. Government Site for People with Medicare
www.medicare.gov/default.asp
Centers for
Medicare & Medicaid Services (CMS)
www.hcfa.gov/quality
Internet
access to Medicare's Nursing Home Compare Database, with
information on every Medicare/Medicaid-certified nursing home in
the
country, organized by state, county and city
www.medicare.gov/Nursing/Overview.asp
MEDSCAPE's Women's Health MedPulse(R)
Women's
health care information
womenshealth.medscape.com
Metagrid
Links to newspaper and magazine database for the
Internet and links to on-line newspapers and magazines from around the world
www.metagrid.com
Michigan Health and
Safety Coalition
27000 W. Eleven Mile Road
Mail Code: B713
Southfield, MI 48034
(248) 448-6266
Midwest Academy
"Training that works for Citizen Organizations"
28 E. Jackson St. #605
Chicago, IL 60604
(312) 427-2304
www.midwestacademy.com
Minnesota Alliance for
Patient Safety
Minnesota Hospital and Healthcare Partnership
2550 W. University Ave.
Suite 350-S
St. Paul, MN 55114-1900
651 641-1121
www.mnpatientsafety.org
Mothers Against Medical Error
(803) 254-8804
National Academy for State Health Policy
Non-profit, non-partisan organization dedicated to helping
states achieve excellence in health policy and practice
10 Free Street, Second Floor
Portland, ME. 04101
(207) 874-6524
www.nashp.org
Maximizing the Use of State Adverse Event Data to
Improve Patient Safety
An October 2005 report by Jill Rosenthal and Maureen Booth
This report reviews
key findings from a summit of state officials who administer reporting systems.
The meeting also included data analysts and data users (providers, purchasers,
and consumers). The purpose of the summit was to identify mechanisms and tools
used to improve data integrity, event report analysis, and data feedback and
dissemination. The report focuses on these issues and raises a number of
challenges and opportunities that states encounter as they attempt to improve
their databases and the usefulness of the data for improving patient safety.
www.nashp.org/psdataresources
Report on state-based
safety centers that have the goal of reducing medical errors
www.nashp.org/Files/final_web_report_11.01.04.pdf
An Act to Reduce
Medical Errors and Improve Patient Health: A Case Study from Maine
News Brief detailing the chronology of Maine's Patient Safety
Legislation
www.nashp.org/Files/Mandatory_reporting_ME.pdf
Quality and Patient
Safety
www.nashp.org/_catdisp_page.cfm?LID=59D44F84-32B5-11D6-BCEA00A0CC558925
Mandatory
Reporting Rules and Statutes listed by State
www.nashp.org/_docdisp_page.cfm?LID=2A789909-5310-11D6-BCF000A0CC558925
Publications
S. Conrow
Comden, J. Rosenthal. Statewide Patient Safety
Coalitions: A Status Report.
Portland, ME. National Academy for State Health Policy. 2002.
Rosenthal , Jill, Maureen Booth
and Anne Barry. Cost Implications of State Medical Error Reporting
Programs: A Briefing Paper.
Portland, ME. National Academy for State Health Policy. 2001.
Rosenthal , Jill et al. Current State
Programs Addressing Medical Errors: An Analysis of Mandatory Reporting and
Other Initiatives. Portland, ME. National Academy for State Health Policy. 2001 .
Riley, Trish. The Flood Tide
Forum, Improving Patient Safety: What States Can Do About Medical Errors.
Portland, ME. National Academy for State Health Policy. 2000.
Rosenthal, Jill and Maureen Booth. How
Safe is Your Health Care? A workbook for states
seeking to build accountability and quality improvement through mandatory reporting
systems. Portland, ME. National Academy for State Health Policy. 2001
.
Rosenthal, Jill and Trish
Riley. Patient Safety and Medical Errors: A Road Map for State
Action.
Portland, ME. National Academy for State Health Policy. 2001 .
Flowers, Lynda and Trish Riley.
State-based Mandatory Reporting of Medical Errors: An Analysis of the Legal
and Policy Issues. Portland, ME: National Academy for State Health Policy. 2001 .
Rosenthal, Jill, Trish Riley and
Maureen Booth. State Reporting of Medical Errors and Adverse Events: Results
of a 50-State Survey.
Portland, ME: National Academy for State Health Policy. 2000 .
Order NASHP Publications on line:
http://nashp.org/store/prodpage.cfm?CategoryID=2#3
National Coalition on Health Care
Non-profit, non-partisan organization comprising almost 96
member groups, including corporations, labor unions, small business, and the
nation's major religious, consumer, and health care provider organizations,
united in their shared concern about the current state of America's health care
1200 G. St., N.W., Suite 750
Washington, DC. 20005
(202) 638-7151
www.nchc.org
National Council on Patient
Information and Education (NCPIE)
Provides direct links to timely, authoritative guidelines, tips and resources to
help consumers use medicines safely and appropriately
4915 Saint Elmo Ave., Suite 505
Bethesda, MD. 20814-6082
(301) 656-8565
www.talkaboutrx.org/consumer.html
National Guidelines Clearinghouse
A public resource for
evidence-based clinical practice guidelines and related documents
www.guidelines.gov/index.asp
The National Institute for Patient Rights (NIPR)
Nonpartisan, free-standing, community interest corporation with a
social mission dedicated to helping patients and their advocates protect and
promote their rights and address violations of patient rights.
Patient survey response forms: www.empowerpatients.com/index_files/Page677.htm.
6635 E 18th Ave.
Denver, CO. 80220
Phone: (303) 321-8600
www.empowerpatients.com Email:
empowerpatients@gmail.com
National Institutes of Health
Research
your medical condition or disease
www.nih.gov/health
National Patient Safety Foundation
1120 MASS MoCA Way
North Adams, MA. 01247
(413) 663-8900
www.npsf.org
To join their list serv:
http://npsf.org/html/join_in.html
National On Line Fact Sheets & Brochures in Patient Safety
www.npsf.org/html/online_resources.html
You Can Help Improve Patient Safety
www.npsf.org/html/patients.html#what
Preventing Infections in the Hospital
www.npsf.org/download/PreventingInfections.pdf
Role of the Patient Advocate
www.npsf.org/download/PatientAdvocate.pdf
Safety as You Go from Hospital to Home
www.npsf.org/download/SafetyAsYouGo.pdf
National Quality Forum
Not-for-profit membership
organization created to develop and implement a national strategy for health
care quality measurement and reporting. Established as a public-private
partnership, the NQF has broad participation from all parts of the health care
system; including national, state, regional, and local groups representing
consumers, public and private purchasers, employers, health care professionals,
provider organizations, health plans, accrediting bodies, labor unions,
supporting industries, and organizations involved in health care research or
quality improvement.
601
Thirteenth Street, NW
Suite 500 North
Washington, DC. 20005
(202) 783-1300
www.qualityforum.org
www.qualityforum.org/txsafeexecsumm+order6-8-03PUBLIC.pdf.
National Safety Council - NSC
http://nsc.org
Their mission is "to educate
and influence society to adopt safety, health and environmental policies,
practices and procedures that prevent and mitigate human suffering and economic
losses arising from preventable causes." Their Safety and Health section
gives information on adverse drug effects as well as news and research.
National Self-Help Clearinghouse
Not-for-profit
organization that was founded in 1976 to facilitate access to self-help groups
and increase the awareness of the importance of mutual support
(212) 840-1259
www.selfhelpweb.org
National Women's Health Network
Consumer advocacy group giving women a greater voice in the
health care system
1325 G Street N.W.
Washington, DC. 20005
(202) 347-1140
www.womenshealthnetwork.org
nhadvocates
Independent Citizen Advocacy Groups Working Together to Improve the
Quality of Life for Our Nation's Nursing Home Residents - not
affiliated in any way with the nursing home industry or with the State or
Federal Government. Groups listed here are not-for-profit organizations funded
through private donations and membership fees, and do not accept money from the
nursing home industry or the Government
www.nhadvocates.org
Ohio Patient Safety Institute
Ohio Health Council
www.ohiopatientsafety.org
OK Center for Consumer
and Patient Safety
PO Box 4481
Tulsa, OK. 74159
800-994-6025
www.okccps.org
Partnership for Patient Safety (P4PS)
Patient-Centered
initiative to advance the reliability of healthcare systems worldwide
One Superior Place,
Suite 2410
Chicago, IL. 60610
(312) 274-9695
www.p4ps.org
Patient
Rights.Com
"Knowledge is Powerful Medicine"
www.patientrights.com
Patient Safety Advocates of
Texas (PSAT)
Network of Texans that aims to be an effective and united
voice to protect Texas patients and improve medical care.
1-888-738-4226
www.texaswatch.org/familysafety_main.asp?insur_id=105&display=true
Patient Safety
Institute
Non-profit,
collaborative and voluntary initiative that combines the power of technology and
the strength of patient-provider relationships to improve care and lower the
costs of healthcare
555 Republic Drive,
Suite 200
Plano, TX. 75074
(972) 444-9800
www.ptsafety.org
Pennsylvania Patient Safety Authority
539 Forum Building
PO Box 8410
Harrisburg, PA. 17120
(717) 346-0469
Pennsylvania Patient Safety
Collaborative
The Healthcare Alliance of Pennsylvania
The
collaborative is a network of 27 organizations representing health care
providers, insurers, organized labor, private industry, and consumers whose goal
is to address the systematic issues that lead to medical errors and to work to
reduce patient injury from errors through identification and correction of the
causes of medical errors.
4750 Lindle Road
Harrisburg, PA 17105-8600
(717) 561-5235
www.papatientsafety.net
www.haponline.org/quality/safety/papsc/
Peoples Medical Society
Nonprofit organization dedicated to educating YOU, the
consumer, about health care and your medical rights
462 Walnut Street
Allentown, PA. 18102
(610) 770-1670
www.peoplesmed.org
Your Medical Rights "How to Become an Empowered Consumer"
Charles B. Inlander & Eugene I. Pavalon, People's Medical Society 1994 (out
of print, but used copies available at Amazon.Com)
Pharma-Lexicon
Look up medical and pharmaceutical acronyms and abbreviations
www.pharma-lexicon.com
Prairielaw.com
A Community of People Helping People
Prairielaw on lawyers.com
c/o Martindale-Hubbell
121 Chanlon Road
New Providence, NJ. 07974
(908) 464-6800
Article: "Pursuing
a Malpractice Claim" www.prairielaw.com/articles/article.asp?channelID=22&subID=115&articleID=1192
PrescriptionForChange.org
A Project of Consumers Union
101 Truman Avenue
Yonkers, NY 10703-1057
When drug companies don't disclose the results of their research, the results
can be fatal. Take action at:
http://cu.convio.net/site/PageServer?pagename=Rx_USmap
Public Agenda Online
Nonpartisan, nonprofit public opinion research and
citizen education organization with 2 missions: A.) To help public
officials and leaders understand the public point of view on major policy
issues. B.) To help citizens understand critical policy issues
6 E. 39 St.
New York, NY. 10016
(212) 686-6610
www.publicagenda.org
Public Citizen
Independent Voice for Citizens
Databank that contains information on doctors who have been
disciplined by state medical boards and federal agencies www.questionabledoctors.org
Health Activist
Courses
Collection of course materials from a number of courses in
medical and public health schools around the country that seek to teach students
the techniques of research-based health activism www.citizen.org/hrg/activistcour/index.cfm
PULSEAmerica
P.U.L.S.E. Inc. is a nonprofit organization for the survivors
and victims of medical errors, adverse events and substandard health care.
Members and participants are encouraged to use their experience to educate and
advocate for a safer healthcare system
PO Box 353,
Wantagh, NY. 11793
(516) 579-4711
www.pulseamerica.org
Chat Room http://hometown.aol.com/pulse516/Chatroom.html
Quality Interagency
Coordination
(QuIC) Task Force
Established in 1998 in
accordance with a Presidential directive. The purpose of the QuIC is to ensure
that all Federal agencies involved in purchasing, providing, studying, or
regulating health care services are working in a coordinated manner toward the
common goal of improving quality care
www/quic.gov
Federal Actions to Reduce
Medical Errors & Their Impact
www.quic.gov/report/toc.htm
Remaking American Medicine
Healthcare for the 21st Century
"Improving the Quality of Health Care...Community by Community"
Remaking American Medicine is a four-part
primetime television series intended for broadcast on
PBS in early 2006. The series is being produced by the award-winning media
company, Crosskeys Media.
KQED in San Francisco is the presenting PBS station.
The series tells the stories of individuals and institutions struggling to
address the significant problems that now plague our health care system. The
PBS series focuses on the breathtaking advances being made in improving the
quality of patient care and will feature compelling profiles of providers and
patients who are working together to change fundamentally the way health care is
delivered in this country. The goal of Remaking American Medicine is to
inspire and empower viewers, by demonstrating what transforming the quality of
patient care can mean to all Americans
http://ramcampaign.org
Safe Care Campaign
Stopping hospital acquired infections
Healthcare aqcuired infection fact sheet:
www.safecarecampaign.org/facts.html
Safe Care Campaign Blog:
http://hospitalacquiredinfections.blogspot.com
www.safecarecampaign.org
SAFER California Healthcare:
Strategic Alliance for Error Reduction
California-based organization that is focusing on research,
education, and clinical practice in patient safety.
http://www.safer.healthcare.ucla.edu
Save The Patient
Their mission is to educate and empower patients and the public
to make effective and informed health care decisions through objective
resources.
Lenore Janecek, President
260 E. Chestnut Street, #1712
Chicago, IL 60611
(312) 440-0630
www.savethepatient.org
StopHospitalInfections.Org
(512) 477-4431
The Society for Prevention of Cruelty to Patients
A non-profit patient's rights organization.
Bradenton, FL 34207
(941) 751 -1069
Fax# (775) 257-6489
www.spcpi.homestead.com
Talk About
Medical Experiences (T.A.M.E.)
Nonprofit organization that advocates and publicly
targets medical errors, discrimination, and abuse in the medical care
delivery system, to the extent that recipients and former recipients of medical
care may need assistance to support and protect their rights
Pres. & CEO, Dr.
J. Talbert
PO Box 6850
Washington, DC. 20020
(202) 678-6038
www.tameinc.org
Tennessee Improving
Patient Safety (TIPS)
Tennessee Department of Health
425 Fifth Avenue North
Cordell Hull Building, 1st Floor
Nashville, TN 37247-0501
(615) 741-5542
Texas A&M University
System Health Science Center
Institute of Healthcare Evaluation
Quality & Patient Safety Initiatives
1716 Briarcrest Drive, Suite 702
Bryan, TX. 77802
(979) 458-0537
Texas Patient Safety Alliance
4410 Medical Drive, #440
San Antonio, TX. 78229
(210) 575-6785
U.S. Food & Drug
Administration
Center for Drug Evaluation and Research
1-888-INFO-FDA (1-888-463-6332)
5600 Fishers Lane
Rockville, MD. 20857-0001
www.fda.gov/cder/drug/MedErrors/default.htm
(Medication Errors)
www.accessdata.fda.gov/scripts/cdrh/cfdocs/psn/index.cfm
(Patient Safety News)
U.S. Dept. of Health and Human Services
(HHS)
www.hhs.gov
The University
of Texas Center of Excellence for Patient Safety Research and Practice
A
multi-institutional and multi-disciplinary project dedicated to improving
healthcare for providers and patients.
www.uth.tmc.edu/schools/med/imed/patient_safety/index.htm
University of Texas Medical Branch (UTMB)
Information about the
UTMB patient safety task force & links to patient safety organizations and
information.
301 University Boulevard
Galveston, TX. 77555
Phone: (409) 772-2618 or (800) 228-1841
Fax: (409) 772-6216
www.utmb.edu/patientsafety
Utah Patient Safety Consortium
Deputy Health Commissioner
Utah Department of Health
PO Box 141000
Salt Lake City, UT 84114-1000
(801) 538-6111
Veteran's
Administration (VA) National Center for Patient Safety
Information
on root cause analysis, the culture of safety & health care safety updates and
news
Department of Veterans Affairs
National Center for Patient Safety
24 Frank Lloyd Wright Drive
Lobby M,
PO Box 486
Ann Arbor, MI. 48106-0486
(734) 930-5890
www.patientsafety.gov
Victim's Justice
Center, Inc.
Mission is to focus on victim's
rights in areas where there are gaps in services/ gaps in justice; including
Medical Malpractice www.howdyneighbor.com/JusticeDenied/page50.html
Virginia Health Quality Center
4510 Cox Road, Suite 400
Glen Allen, VA. 23060
(804) 289-5320
www.vhqc.org
www.vhqc.org/index/consumers
Virginians Improving Patient Care and Safety (VIPC&S)
4205
Dover Road
Richmond, VA. 23221
(804) 353-2721 ext. 138
www.vipcs.org
Tips on safeguarding your health care:
Medicines: www.vipcs.org/patients/medicine.htm
Hospital
Stays: www.vipcs.org/patients/hospitals.htm
Surgery:
www.vipcs.org/patients/surgery.htm
Home
Health Equipment: www.vipcs.org/patients/homehealth.htm
General
Safety: www.vipcs.org/patients/end.htm
Washington D.C. Patient Safety Web site
Provided as a service to the public, health care providers
and policy makers who wish to be informed about regional initiatives and
developments relating to patient safety
www.dcpatientsafety.org/default_index.html
Washington State Pharmacists
Association
117 E. Louisa St., #424
Seattle, WA 98102
www.pharmcare.org
Northwest Medication Safety Council
www.pharmcare.org/consumer/nwmsc/nwmsc.html
Site offers some basic tips to consumer and professionals for improving
medication safety.
Wisconsin Patient Safety
Institute
330 E Lakeside St.
Madison, WI. 53715
(608) 283-5497 or 800-762-8976
www.wpsi.org
